Jently said:
That's an unfair blanket statement bitterpartyof1. There are plenty of people who care and caring hurts a lot of us too but do you allow others to reach in and be there with you I wonder?
I feel it isn't unfair blanket statement from where I stand, and I feel many many people can relate to this. First ask the question, then feel free to judge the statement.
If people were reaching in to me, do you think I would be looking for complete strangers to share my innermost pain with? I feel if I had the support system I needed I would not be here, explaining myself now. Maybe I am wrong, and being unfair Jently, but I
feel the majority of us are lacking support systems and our families, friends, and local communities are not supplying the kind of support we need, therefore we are finding sites like these for contact with similar souls in pain.
I have been extremely appreciative of the small things a few people still do, but my life before when I was physically able is completely different from where it is now. It is hard for people to understand my situation, and it scares them too. They have jobs, and lives, and I see the fear and discomfort when thinking about what has happened to me. I don't know if they put themselves in my shoes. So the conversations are short if they happen at all. The invites have stopped when you have to keep declining despite the desire to keep up. I watch the lives they continue and I am happy for them, but more sad because I can no longer be or do and it feels as if eventually I may cease to exist completely.
It is a painful truth that people that are chronically ill live very different lives despite our efforts. This world was not meant for those of us that cannot keep up...